Rare Patient Voice LLC

Rare Patient Voice connects patients and family caregivers with all types of research opportunities. We meet patients and caregivers at in-person events such as conferences, meetings, and walks. We also invite patients and caregivers to join our community by working with thousands of patient advocacy and support groups through our referral program. When you need to include the patient's voice in your research, they are ready to respond in sufficient numbers to help guide your marketing decisions.

Our goal is to connect clients undertaking research studies with patients and family caregivers who are interested in sharing their opinions and insights about their medical conditions.

We know that the time and input of patients and family caregivers is valuable. To date we have paid patients over $15 million dollars for participating in research since 2013.